John Crowley has never, never, never quit. After two of his young children were diagnosed with Pompe disease, a rare and fatal neuromuscular disorder that affects only several thousand children worldwide, Crowley defied the odds of survival and embarked on a journey to find a cure, parlaying his personal struggle into a professional juggernaut.
The Crowley family story has been featured in The Wall Street Journal, is the subject of the book, The Cure, as well the inspiration behind the upcoming film starring Harrison Ford, Brendan Fraser, and Keri Russell. It is an inspiring story of what it means to do "whatever it takes," against phenomenal odds, for your children. It is about hope, learning, life and love.
Traveling the world over, competing against time, Crowley located a scientist developing an enzyme therapy for Pompe. Grasping at this last hope, he quit his job, took out a $100,000 home equity loan and founded Novazyme Pharmaceuticals, a five-person startup biotech company zeroing in on the drug.
In less than a year, Crowley raised over $27 million for Novazyme. It quickly grew to a 100-person company and Genzyme acquired it for $225 million—one of the largest amounts ever paid for a preclinical drug development company in biotech history. He watched in awe as his own children began receiving potentially lifesaving therapy.
Crowley’s emotion-packed presentation details what it means to truly do whatever it takes, against phenomenal odds, to reach a goal. Taking life’s adversity and turning it around to scale the heights of hope and inspiration, he personifies relentless determination and the power of never giving up.
Now Chairman and CEO of Amicus Therapeutics, Crowley continues to guide emerging biotech companies, inspiring them to seek out opportunity and reach unprecedented success. Distributed by Tubemogul.
The Crowley family story has been featured in "The Wall Street Journal" and is the subject of the book, "The Cure," and an upcoming film starring Harrison Ford, Brendan Fraser, and Keri Russell. Here's an interview with John Crowley and Brendan Fraser. Distributed by Tubemogul.